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DiscussionHigh or Fluctuating Chromogranin A Level: What does it mean?
Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)Comment receiving replies
Replies to "I’m tired. No cancer diagnosis. Lots of cancer in my family… mom, aunt, grandma and my..."
Hi @peg152
It will be good for you to see a doctor who can look more thoroughly at the Chromogranin numbers as well as do other tests. As mentioned by @gsm13161, other labs and tests need to be done to determine the significance of the CgA numbers, such as a 24-hour-urine lab, and other lab work. The combination of tests will give you and your doctor a clearer picture. Given your family's cancer history, I know that cancer is probably your first thought when something is out of the normal range but try your best not to worry about what might be. As I write this, I know that this is easier said than done. (I worry too!)
I have had three surgeries for carcinoid cancer in the upper digestive tract and I understand that any surgery (such as yours for diverticulitis) does set up an environment for digestive problems with many foods. It is good that you have recognized some of those (like high acid foods).
It will undoubtedly put your mind at ease to talk with a doctor and have more testing and a conversation about the significance of the CgA numbers.
I look forward to hearing from you again. Do you currently have an appointment scheduled?