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GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Polymyalgia Rheumatica (PMR) | Last Active: Feb 12 11:08am | Replies (262)
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@issyb

Interesting that you say that about regulating your own prednisone that’s kind of what I am doing even with the doctor. I read something very interesting that said working with this prednisone and tapering. It is an “art not a science.” I am currently down to 20 mg from 40 mg.. I have PMR/GCA. I carry a a bottle of prednisone with me wherever I go in case I need to up at at any moment. !!!

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Replies to "Interesting that you say that about regulating your own prednisone that’s kind of what I am..."
emo | @emo | Jun 21, 2023

I love that you carry a bottle of prednisone! Lol. We gotta do what we gotta do 🙂

My dad's doctor (he is the one w/ PMR) said something similar. She said: "We need to listen to what his body wants to do, and follow that as a guide." If only if were easier to know what it was saying sometimes >_<

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