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Mentor

Plasmapheresis - anyone had success?

Posted by Rachel, Volunteer Mentor @rwinney, Feb 14, 2020

Hello -

I haven't heard too much about plasmapheris and am curious if anyone out there in the neuropathy world has successfully tried it?

I had the same same thoughts when receiving lidocaine infusions and truth be known, they didn't work for me and that's probably why there was not much said about them as a successful treatment on this forum.

Thank you for any shared input.
Be well -
Rachel

Interested in more discussions like this? Go to the Neuropathy Support Group.

helennicola | @helennicola | Feb 15, 2020
In reply to @johnbishop "@helennicola, the new Protocol 525 will basically be the same supplements as we now take only..." + (show)
@johnbishop

@helennicola, the new Protocol 525 will basically be the same supplements as we now take only in fewer pills with a few enhancements. Only slight changes...the main change is fewer pills to take and not having to order individually. 525 comes in one box. You can see a list of the products on the websites order page where there are links to the Amazon page where we order from.
http://solutions2pnpd.com/products/. It is tough if you aren't able to use Facebook but I think they may be looking into enhancing the website somehow. Have you joined the group on Facebook? I imagine you would have trouble trying to see it if you are not a member since it is a closed group. If you want to join, here is the link - https://www.facebook.com/groups/SPNPD/

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Hi John, yes I did join the group a while ago but my problem is with Facebook! Thanks for responding, I will try your links.

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helennicola | @helennicola | Feb 15, 2020
In reply to @rwinney "Hi Helen I have LDN but have yet to try it because Im unable to have..." + (show)
@rwinney

Hi Helen

I have LDN but have yet to try it because Im unable to have required 6 hr stretch without hydro at night. Not a fan of Kratom personally. Have a nice day.

Rachel

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Thanks Rachel, same to you. 😊 Helen

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Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 17, 2020

@kevinking @wellness3070 @suzylulu @mikween @mfobrien36 may have some thoughts on plasmapheresis for neuropathy.

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 17, 2020

How could I not share flowers with my fellow pain warriors. A boost always helps! My best to all for a comfortable day.
~Rachel
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Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 18, 2020

@jenniferhunter @jakedduck1 - do you have any thoughts on plasmapheresis as a potential treatment for neuropathy?

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2 replies
Leonard | @jakedduck1 | Feb 18, 2020
In reply to @lisalucier "@jenniferhunter @jakedduck1 - do you have any thoughts on plasmapheresis as a potential treatment for neuropathy?" + (show)
@lisalucier

@jenniferhunter @jakedduck1 - do you have any thoughts on plasmapheresis as a potential treatment for neuropathy?

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@lisalucier
no, I have never had that done although I donate plasma every 28 days, blood every 58 days and platelets every 2 weeks but I’ve never had antibodies removed and had it transfused back in. i’ve never heard of it before your post.
Jake

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1 reply
Mafalda | @mafalda | Jun 20, 2023
In reply to @jakedduck1 "@lisalucier no, I have never had that done although I donate plasma every 28 days, blood..." + (show)
@jakedduck1

@lisalucier
no, I have never had that done although I donate plasma every 28 days, blood every 58 days and platelets every 2 weeks but I’ve never had antibodies removed and had it transfused back in. i’ve never heard of it before your post.
Jake

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Hi, I'm curious, do you donate plasma every 28 days, blood every 58 days and platelets every 2 weeks as a therapy for yourself?

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Leonard | @jakedduck1 | Jun 20, 2023

@mafalda
You could say it’s therapy for me since it makes feel good knowing that I’m helping people. My priority is to donate platelets since their shelf life is only 7 days and my motivation in donating them is that children with cancer need them as well as others of course but the children get to me. About 7,000 units of platelets (45,000 units of blood products are needed daily in the U.S.) Another reason is when my brother was in a serious car accident and needed 100 units of blood.
I believe whole blood lasts 42 days if refrigerated and 10 years if frozen and plasma lasts up to 1 year.
Take care,
Jake

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jenatsky | @jenatsky | Jun 27, 2023
In reply to @lisalucier "@jenniferhunter @jakedduck1 - do you have any thoughts on plasmapheresis as a potential treatment for neuropathy?" + (show)
@lisalucier

@jenniferhunter @jakedduck1 - do you have any thoughts on plasmapheresis as a potential treatment for neuropathy?

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I read online that it’s only used to treat inflammatory demyelinating PN but not others.

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