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My PN? What do you mean it's "progressive"?

Neuropathy | Last Active: Jun 23, 2023 | Replies (36)
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@SusanEllen66

@ray666 my PN is caused by a rare autoimmune disease called Cutaneous Polyarteritis Nodosa. My large fiber nerves are damaged. It started in my feet back in 2016, and I feel like it has progressed up to my arms and hands. My life has not been the same since. I have learned to be flexible about what I can continue to do or not. I have also taken up new hobbies that keep my mind off my pain.

Progressive PN is annoying of course, but it’s not a huge issue for me. I’m almost 74, and I have several other conditions that are a bit more difficult. Fibromyalgia is a very hard thing to deal with. The pain from that and osteoarthritis is debilitating sometimes.
Now I had to add occipital neuralgia to my list. That’s inflammation of the nerves under my scalp. It brings it’s own pain.
Life has been a great journey. Every day is different and every moment is a gift!

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Replies to "@ray666 my PN is caused by a rare autoimmune disease called Cutaneous Polyarteritis Nodosa. My large..."
Ray Kemble | @ray666 | Jun 21, 2023

Good morning, Susan (@SusanEllen66)

I hadn't heard of Cutaneous Polyarteritis Nodosa. You say it's large fiber, too, like mine. Of course, I'm still guessing, going by what I've been reading about PN's various symptoms. I've only had my diagnosis of idiopathic PN, but I'll be meeting with my doctor in a few weeks, and I'm hoping we'll be able to refine my diagnosis a little bit at that time.

I'm so glad to hear you say that your PN, as progressive as it's shown itself to be, is not a "huge issue." That speaks of resilience! I applaud you for that. I can only hope to be half as resilient as I continue living with my PN.

I also applaud your saying that every moment of living is a gift. I've had moments since my PN came along when I doubted that. I've recently learned that keeping my spirits up is a matter of reframing each day, rearranging my ambitions, and holding topmost in mind the many things I can still do. I can regret the many things I can no longer do, but what purpose would that serve? Between the "can do" and the "no longer can do," I'd rather I appreciate the former and not dwell on the latter.

Cheers!
Ray

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