← Return to GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

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@alohamelanie

I also feel unsteady when I am having a bout of pmr. I would say I feel a little dizzy instead of shaky. And very fatigued. I just want to lay in bed and watch TV and every chore is an effort. I used to be quite hyperactive and always working around the house and yard. I was never a "sitter". With pmr my visual focus is shaky, now that I think of it. I think I will go and start on some prednisone. Maybe I'll try 5 mg. I used start with 10 and then work down. I'll see how I do on 5 mg. My husband is a family physician and also has a veterinary degree. He went to vet school at Washington State, then to Vietnam where he oversaw the dogs and helped with human surgeries. Then back to the US and medical school. He diagnosed me and leaves it up to me to titrate my prednisone myself. I am an RN from FSU nursing school. I'm 74 and had my initial attack at age 69. I think people should regulate their prednisone personally depending on how they feel.

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Replies to "I also feel unsteady when I am having a bout of pmr. I would say I..."

Interesting that you say that about regulating your own prednisone that’s kind of what I am doing even with the doctor. I read something very interesting that said working with this prednisone and tapering. It is an “art not a science.” I am currently down to 20 mg from 40 mg.. I have PMR/GCA. I carry a a bottle of prednisone with me wherever I go in case I need to up at at any moment. !!!