← Return to Anyone have a neuroendocrine tumor (NET) in the spine?

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@hopeful33250

You ask a good question, @rrlbees, but unfortunately it is one that no one can answer with any certainty. Each type of lesion is different and therefore are treated differently. Some members who have had radiation for spinal lesions may be able to share their experiences, but it might not reflect what your medical team may suggest that is best for you.

If you feel a need for a second opinion on treatment, you might want to consider a phone/virtual appointment to go over treatment options with a NET specialist.

If you don't mind sharing more, do you have a date scheduled for the scan?

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Replies to "You ask a good question, @rrlbees, but unfortunately it is one that no one can answer..."

Yes, unfortunately our facility couldn’t get me in until July 19th. I then get my lenreotide injection the next day and visit my oncologist that day also to review the results. I do also have a NET specialist whom I absolutely love. She is Dr Raj at Memorial Sloan Kettering. I will be having the scan slides sent to her for her thoughts also. Then she, my local oncologist and myself will decide on the next steps including consulting with other disciplines such as surgical oncology or radiation oncology etc.