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DiscussionAnyone have a neuroendocrine tumor (NET) in the spine?
Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)Comment receiving replies
Replies to "You ask a good question, @rrlbees, but unfortunately it is one that no one can answer..."
Yes, unfortunately our facility couldn’t get me in until July 19th. I then get my lenreotide injection the next day and visit my oncologist that day also to review the results. I do also have a NET specialist whom I absolutely love. She is Dr Raj at Memorial Sloan Kettering. I will be having the scan slides sent to her for her thoughts also. Then she, my local oncologist and myself will decide on the next steps including consulting with other disciplines such as surgical oncology or radiation oncology etc.