← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@kayted

Hi folks - I'm Ted and I'm almost 81 years old - I have suffered from severe neuropathy in my feet for years now - I am also in permanent Atrial fibrillation - been able to get by OK - However, almost overnight I became a crippled old man - my neck, my shoulders and arms, my lower back, both of my hips and down to my knees all hurt me so bad I can hardly stand up, sit down, get in and out of bed - I can't remain in one position but for a few minutes and then the pain becomes almost unbearable - getting very little sleep - seems to get worse about 11pm and remains impossible until morning. I haven't been able to see my GP yet - next Tuesday. So I haven't been diagnosed yet but have been looking on the internet for answers and found out about PMR and it sure fits my symptoms - I'm just starting my journey with this malady - we'll see how it goes - glad to have found this forum!

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Replies to "Hi folks - I'm Ted and I'm almost 81 years old - I have suffered from..."

I hope that you get the care that you need very soon! I'm just 52 and the symptoms of PMR for me (just a couple of months ago) were initially very jarring, needed help out of bed, mobility was poor, pain was often unbearable, particularly in the mornings. This forum has definitely helped me understand what I'm up against, and that it's different in some ways for everyone. At the moment, I've been symptom-free for about a month, but I was in a very different place a month ago. But once my rheumatologist got me on the correct dosage of prednisone (guessed too low initially, for the first 2 weeks), it's been very good, almost a different world. I've been advised to start tapering my dosage tomorrow, so hopefully by early next year, I'll be off the prednisone completely. I'll just have to hope that it all works out and, if it doesn't, I'll just have to try something else and hope that that works instead.