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Can’t find help; at a total loss

Just Want to Talk | Last Active: Jul 4, 2023 | Replies (27)

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@1k194

Thank you all very much for the support, hugs and suggestions!

To covidstinks2023:
I have a theory on what is “wrong” with me (medically speaking; the total list is another story…). I’ve come to the conclusion through years of research of my symptoms. I’ve considered many theories but the current one would explain everything. Unfortunately, it’s one of those things that many people, including some medical professionals, don’t believe even exists. I have a list of symptoms, most to least, that I’ve gone over with medical staff. No one seems to listen/care/take me seriously/etc. I’m not sure, but they say the same unhelpful things, do the same inconclusive tests and then just drop the ball; never pursuing things further. I trust our pets’ vet more than any human doctor I’ve ever met. I’m in the same boat trying to get help for both my parents. They both have serious health issues and we can’t find doctors who seem to care/know what they’re doing. Thank you for your kind words.

To Helen:
Thank you for your kindness and the links; I will check them out. I certainly think depression is part of the problem; I have self loathed since I was in the earliest grades of elementary. I am, however, frustrated with the doctors always landing on that and then not pursuing further. I know there is a physical cause for my symptoms, at least some of them. I have close female relatives who have a lot of the same symptoms. I’ve tried antidepressants, unfortunately none of them worked. Today, I am pretty tired and overwhelmed. It’s my day off from caring for my parents and I am overwhelmed with all I have to catch up on at home :-/

To Jeff:
I soooooo need a break! A real break. Not a day at home amongst all the dozens of things that need done. I’m a homebody; I’d rather be home than anywhere else, unfortunately, I can’t relax when that’s also where I work. And boy do I know about having to be your own advocate! I’ve been livid with the healthcare field lately with trying to help my parents get the care they need. I can’t believe how complicated they make everything and how few of the so called professionals seem to care about their patients.

To Chris:
Yes, caregiving is exhausting; physically, mentally and emotionally. I’ve been a caregiver pretty much my whole life. Starting at about 12 until now. I’m sorry you’ve had that “it’s all in your head” attitude thrown at you. Oh, that attitude makes me furious! because that’s exactly what I’ve experienced. It’s bad enough to feel so bad that it saps your will to go on and then for someone to treat you that way, especially those you go to for help…ridiculous. I’m so glad you were able to find some answers and relief 🙂

To grammy82,
Thank you so much for your kindness. Your post really resonates with me. I feel sooo inadequate! But I really do think I should do so much better 🙁 Then sometimes I get so angry because few things in my life that are upsetting/difficult/etc were anything I did or chose. I get angry when I think about all the things I feel I’ve been saddled with; things I didn’t ask for. But then I get angry with myself for feeling that way. I don’t have kids or a regular job, so why shouldn’t I be the one who picks up the slack? But then I get angry again because I think about how I’ve been doing this since I was 12, and mostly do to others’ bad decisions or stubbornness. I have so much anger, then I feel so guilty for it. My husband and I had about 2 years of a calm happy life (as long as I stayed away from my family) before my parents’ health took a sharp decline and I became caregiver again. I long for those days! When my husband and I could make plans for our life together and actually follow through with them. I feel like it took me a lifetime to get out of the dark, hopeless hole I was in before we met, and now I feel like I’m getting sucked back into it. My physical symptoms were still present during those first 2 years of marriage, but they were much less severe. For one thing, when I was exhausted or not feeling well I could just go rest. If I had looming chores, I just did them after rest. I had few things I HAD to do. I could live my life out of what I wanted to do. That was amazing! Because I’d NEVER had that before. Everything all my life was what I was told/expected to do….and that “do’s and don’ts” list was long! Now it feels like I’m back there again. I’m not sure I can do it anymore. I also get angry, especially with my family, because I feel like I am (and always have been) expected to do or put up with things that they wouldn’t do or put up with.

(Good grief what a long post :-/
Thank you for reading.

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Replies to "Thank you all very much for the support, hugs and suggestions! To covidstinks2023: I have a..."

Yes....a long post but a really important one. It helps everyone understand more. You know what I hope? I hope you read it over again. You feel bad because you aren't superwoman or meeting the demand of what seems to be some selfish people who have messed up, and ...no, you don't have to put Humpty Dumpty together again. Are there any agencies or social workers you can reach out to? A big task has been tossed at you, and you are trying to do the impossible...don't measure your value by someone else's opinion and demands.
I know sometimes I speak too plainly...no, I don't know the whole story, but I can see what price you are paying. Please see what help you can get. My best💞

1st of all you should for a place that both your parents can go live in and get the help they need 2nd of all your exactly right, your caught up once again having to live that life of being expected to do EVERYTHING and your grown up and shouldn't have to worry about EVERYTHING and be EXPECTED to do EVERYTHING. That's why you feel the way you do! Go find a place for your parents to be looked after and treated as needed, you can always go and visit and for no reason do you DARE FEEL BAD because you deserve to be happy, deserve to live your life with your spouse so as soon as you do this, a great bundance of pressure will automatically be lifted off of you and you and your husband need to take a vacation for the 2 of you to find each other again 😊 I lost my mom to cancer almost 25 years ago, I wasn't in her life from age 12 all through teenage years and early adult life. I was upset with her for a serious r3ason I choose not to say but I had to put my anger aside and come back to her full blown 9 months pregnant with my 1st, her health wasn't good, but my heavens woman you deserve a life too and it's time that you do this for YOU & YOUR health, well being, and happiness. Don't listen to everyone else on their opinions as to why you shouldn't because their not there in your shoes or there helping you. So strongly suggest for you to take my advice, you have to take care of YOU before you can take care of anyone else including your parents. It all may sound harsh but it's the truth. If I were you I would do it so that they can receive and get the help they need that you cannot yourself provide that for them, but do go and visit them, they may be angry or resentful for a bit but they will realize you did the right thing for them and you.