Are you taking Reclast for osteoporosis?
Two years ago I was diagnosed with pretty bad osteoporosis because of the prednisone I was on for my autoimmune disease. I started taking Fosamax (a bisphosphonate) and had no problems. Today, the endocrinologist suggested that I switch to Reclast for 3 yearly infusions. Has anyone else taken this drug? What side effects have you had?
Thanks
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Don’t take strontium ranelate. It’s completely different than strontium citrate. It’s explained on internet. Ranelate is dangerous. Can cause heart problems. I don’t care about Dexa scans. Who’s to say if they’re accurate. Even getting a scan on different machine changes the results. I’m worried about fixing my spine and I’ve made my choice. Everyone needs to research. Pharmaceutical companies charge thousands of dollars for infusion drugs. They don’t want us to use vitamins and minerals proven to improve osteoporosis.
Thank you.
I agree with you. FDA acknowledges about thigh fractures. Everything you said is correct. Your body stops removing dead bone and building new bone. These drugs put a coating over your bones. I read if you fall your bones will shatter like glass
I have had several infusions of Reclast with no side effects or problems.
@windyshores
I appreciate your reply and information. Last night was my first dose and I experienced mild nausea and headache about an hour after administering a full dose. Am keeping my fingers crossed for ongoing treatment. After you complete your full course will you start/resume Prolia?
@ymv If nausea and headache are too bad, go down one click. For a week or two. I almost never took the full dose and still got good gains. But of course it is optimal to take the full dose and it sounds like you will be able to without significant side effects. You do have the option of reducing and then ramping back up!
My doc does not prescribe Prolia and I have never taken it and never will. That means Reclast at some point anyway!
@rtelega it is important that people know the effect of strontium on DEXA's because people post about their gains while on strontium and other people read it. But I agree with you that DEXA's seem to fluctuate anyway- I look for trends.
Tymlos, the one I have been taking, is not an infusion drug. I inject it daily. I am so grateful for it. With 7 spinal fractures I could not waste any time and I think the COMB protocol would not work fast enough or intensely enough for someone like me.
The pharmaceutical company, Radius, gave me Tymlos for free through their patient assistance program so they didn't make money on me, they lost it 🙂
To all-when combo protocol was mentioned I thought it was going to be something I had heard about , but it was not .HOWEVER, I tripped over this video of information and maybe you can as well . it was from a Dr. Benjamin Leder , an endocrine dr from Mass General Hospital , the title was" Combined and Sequential Approaches to Osteoporosis Therapy." It was very interesting and informative. Studies of what meds they've used together , and different sequences of them. Plus he discussed where they are at in the development of new drugs, which was a bit dismaying , as he stated there isn't a lot going on to look at researching new med options. I feel sad about that . Makes me think they feel like what's out there is working and the best they can come up with , which I think many on this forum clearly would disagree with!!!! Hope you can find this information if you're so inclined!
Great video @ans. Thank you!
It really shows the blunting of the effects of anabolics by using anti-resorptives first (often required by insurance). The standard of practice dictated by insurance needs to change!
@windyshores , I’m curious why your doctor doesn’t use Prolia and why you would never use it? It’s often so overwhelming to research information about osteoporosis treatment as no treatment is without negative factors.