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@ellegeee

Hi, my name is Leslie and I have recently started on my PMR journey with bilateral upper arm, hip and leg pain. Although my blood results were normal, my rheumatologist gave me a one week high but tapering course of prednisone which immediately worked. My pain returned shortly after taking my last pill, so I was prescribed 6 mg of methylprednisolone and was pain free until a few days ago when I started to have extreme stiffness only in my legs in the mid afternoon and evenings. I have no pain or stiffness in the morning when I awaken so I’ve been experimenting with taking my prednisone in the early afternoon, but the stiffness in my legs continues to bother me about the same time no matter when I take my medication. I have an appointment with my rheumatologist at the end of June. I had open heart surgery last year and my cardiologist is not pleased with the addition of prednisone. Thank you for any advice or suggestions about my leg stiffness which is affecting my ability to walk.

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Replies to "Hi, my name is Leslie and I have recently started on my PMR journey with bilateral..."

Hi Leslie @ellegeee, Welcome to Connect. Both times my PMR was active I did have stiffness in the legs but it was mostly in the morning and I didn't normally have any associated pain with it. Then when the prednisone kicked in and I got to moving around the legs loosened up and felt better. I think it's good that you have an upcoming appointment with your rheumatologist.

It might be good to keep track of other symptoms you have during the day and note the times they occur so that you can discuss them at your upcoming appointment. Do you keep a daily log of your dosage and pain levels?