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My Sister and Best Friend

Neuroendocrine Tumors (NETs) | Last Active: Jun 23, 2023 | Replies (38)

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@tomrennie

It technically is two chemo pills; capecitabine and temozolomide. You will take more than two of them unfortunately. I physically feel ok today. My body needs another day or two to recover. That's it. Usually, I would be great emotionally. But, this is a third month. I get scanned again on July 3. I meet with the oncologist on July 6. Is the CAPTEM still working? Did my tumors shrink more? Or didn't they? I only had a little nausea this time and didn't vomit at all again. Is that cause the chemo stopped working? The mental and emotional side of things are the hardest. You have to live with that unknown almost all of the time. That can be hard to manage.

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Replies to "It technically is two chemo pills; capecitabine and temozolomide. You will take more than two of..."

At the initial CT scan she had 10 hypodense lesions on her liver one measured 3.5 cm. She’s going to call tomorrow to find out if they scheduled her pet scan. I hope that they will have that scheduled when she calls tomorrow. She is waiting to have that done so that she can go see another oncologist at another hospital here.