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@vjs

I’ve been reading a lot of these posts. There are many people who are tapering that are in actemra or methotrexate. Is this the normal course of treatment for this disease? I’ve been on pred 15 mg since May 26 and am to taper to 12.5 later this week.

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Replies to "I’ve been reading a lot of these posts. There are many people who are tapering that..."

Hi @vjs, When it comes to PMR I don't think there is a one size fits all normal treatment. My own experience having PMR twice was being started on 20 mg prednisone for both occurrences and directed by my rheumatologist to taper slowly and listen to my body for when and how much to taper. My first time took 3-1/2 years to taper off. The last six months was going back and forth between 1 mg and 1/2 mg until I could finally stop taking prednisone and not have morning pain at a level I considered too much. For me that pain level is between 1 and 2 and it usually went away after moving around some after waking up. Six years later the PMR came back and it took me 1-1/2 years to taper off. Of course I was a lot better with my lifestyle and eating habits the second time around which I think made a difference.

Do you keep a daily log of your pain level when you get up and your dosage of prednisone for the day? That really helped when deciding when I should or shouldn't taper and how much to taper down.