← Return to Anyone have a neuroendocrine tumor (NET) in the spine?

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@rrlbees

A question for the group. Like I’ve said I am having a gallium dotatate scan. If the two lesions on my spine are found to be neuroendocrine, I may then proceed to radiation. Does anyone know what the radiation schedule is? How often and for approximately how long? Daily? Weekly? Bi weekly? Etc. Thanks!

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Replies to "A question for the group. Like I’ve said I am having a gallium dotatate scan. If..."

You ask a good question, @rrlbees, but unfortunately it is one that no one can answer with any certainty. Each type of lesion is different and therefore are treated differently. Some members who have had radiation for spinal lesions may be able to share their experiences, but it might not reflect what your medical team may suggest that is best for you.

If you feel a need for a second opinion on treatment, you might want to consider a phone/virtual appointment to go over treatment options with a NET specialist.

If you don't mind sharing more, do you have a date scheduled for the scan?

Quite often for spinal tumors a form of radiation called cyber knife is used. I’m having cyberknife to L4 in a few weeks. Usually there’s 3-5 treatments on consecutive days lasting roughly 1 hour. You will need to have a CT scan so they can map out the treatment. Cyberknife sounds scary but it is like any other radiation however they can deliver higher doses because it is precisely targeted. I’ve had C2, L2,L3 and T12 cyberknifed and since they are all stable. Each cancer responds to radiation differently but it sure beats surgery.
Good Luck