Connect
← Return to Long Covid burning sensation inside their muscles?
Discussion
Long Covid burning sensation inside their muscles?
Post-COVID Recovery & COVID-19 | Last Active: Mar 9 6:27am | Replies (19)Comment receiving replies
@aztennisguy - you are absolutely correct, it's an immune system nightmare virus. That's why so many people, like us unfortunate folks end up with strange and awful symptoms; yet, there are folks who got Covid and did fine. My guess is we have some virus prior in our system, like chicken pox that turns into shingles.
Out of curiosity, were you vaccinated? I was not. Sadly my Doc wouldn't''t help me when I got Covid and give me any medication or order the monocolonal antibodies. How about you? Were you put on meds?
I am having terrible symptoms pop up, i.e., a chalazion on lower lid and also blepharis which is basically like dandruff on your lashes and creates dry eyes and pain. I NEVER had problems with my eyes! The chalazion became inflamed and infected, had to have numerous biopsies to rule out cancer and 2 surgeries - and guess what, the chalazion and pus came back. This beast of a virus that lives within us will not allow our bodies to heal and it's taken over!
I also want to try the hydroxychloriquin.
Replies to "@aztennisguy - you are absolutely correct, it's an immune system nightmare virus. That's why so many..."
I never got vaccinated. No one put me on meds when I had Covid, it was in 2020 before anyone knew anything and all doctors were arguing about what was the right course of action so I suffered at home alone with vitamins and home remedies.
All docs now refuse to treat anything except my muscle cramps that Tizanidine helps with. But nothing else so far and I suggested that when nothing else worked because my friend with MS suggested it and it’s been the only relief.
Connect
Well like you said, covid hit some people with just the sniffles, and others got hit bad. Assumption is personal genetics. If the genetics cannot handle a virus like Covid, it will turn on receptor cells that will turn on maybe some predisposed genetic immune issue we might have been prone to get maybe years way down the road. My EBV values are off the chart my doctor said after I got Covid. I played competitive tennis and taught some elite junior tennis players right before covid, and nowadays can barely walk up stairs some days with insane muscle pains as if I did 100 squats or 100 pushups. Frustrated is not the word because my blood work is ok as far as CK, CRP., etc. so doctor's look at you like a deer in headlights, yet I tell them maybe they should run some tests like Dr. Bruce Patterson has run with are immune marker tests, etc. to see if an antibody tests look off. I am just getting into the mayo covid clinic now, and hope they will run similar tests as I think I already know the tests that need to be done to try to see if certain Imterleukin values look off. If they are, than can see if it matches those type of markers seen in other autoimmune diseases, than they can treat things better.
Everyone is frustrated with post covid care, etc.. It is so knew, even some of the smartest doctor's are unsure why the symptoms in perfectly healthy people. It now gives me an apprecaiation to those that have autoimmune issues all their life. I took life and tennis for granted, now I know I need to just work on finding answers for myself, and hopefully others. I am a guinea pig basically, and have had almost every blood test done under the sun. The remnants of the virus stay in your cells, and if you stress yuourself out, or upset your body in any way, basically covid comes back to life with the remnants in your cells, and causes immune system more issues.
I will keep you, and others on the forum up to date if I see anything working for me as far as possible medications, etc. I usually go the natural route, but I have tried the natural supplements and they made me worse actually. I do not recommend taking all kinds of supplements as they can upset your GI tract, etc. Stick to whole foods, etc. and see what triggers the body with symptoms.
Keep yourself healthy! Try to stay positive because right now covid is all about self care because it will be 10 years before they really know why some of us healthy people are suffering from crazy symptoms. It is 100% an autoimmune reaction in the body, and that is what the need to target to safely calm the system without steroids. If they find that option, at least many symptoms will get lowered. I don't think it will be possibly to reverse any of the covid cell damage though unless they decide to offer long haulers special IGG or autoimmune antibody infusions etc. to help the T Cells, etc. in the body.