Yes I am. My husband was diagnosed at 50!! 5 years in now. In 2018 given 3-6 years to live.
The cognitive and judgment has now taken over.
It’s a horrible disease in my eyes, a slow death. I hate everything about it. A guy who was always helping others, hard working, and a great dad, now someone we don’t know.
We have anger issues, can’t keep him home, recently walks outside in his underwear, and are really considering an assisted living.
It sucks because he’s too young to qualify for anything and makes too much in SSDI! Makes too much because he worked his butt off and now gets no help.
I too have a progressive disease and it sucks to have to have our 23 year old take care of what we can no longer do.
But life goes on. One thing that really bothers me is that others think that he’s not that bad, but they don’t live with it 24/7.
Take away the keys sooner than later, start checking with county for help ahead of time, and notify and educate your local police department of your situation. They will think they are diabetic, drunk, or on drugs. Been through it all.
Being diagnosed so young, it’s taken an emotional toll on me. What was an everyday kiss, pat on the rear, everything gone. Separate bedrooms now, to ease the stress and smell from a once a week shower. Don’t get me wrong, I love him, but it’s different. It’s basically a roommate situation and that’s it.
I feel sorry for our children. I’ll be okay but it’s them I worry about.
Such a rare disease too! We’ve done research and are donating his brain. If you haven’t done research, please do! My heart goes out to all of you!