← Return to Long Covid burning sensation inside their muscles?

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@aztennisguy

Well let's hope all the money pumped into the research starts to find out why the body if fighting itself in covid. It mainly is an autoimmune condition I believe as I have never had any issues with muscles, muscle burning, brain fog, etc. My first covid experience was not great, but the 2nd one seemed to turn some muscle issues on some how, yet my CRP, CK levels look ok. The muscles burn for no reason, and has now kept me off of any exercise basically. It is insane that the docs maybe cannot associate this covid with other type of mast cell activation syndrome stuff, etc. It is the body just turning on the immune system. My rheumatologist wants me to try hydroxychloriquin, but not sure if you or anyone else has tried similar stuff for the muscle pains. I also have read some posts about low dose naltrexone, etc. Maybe some other medications might help as well but i do not want to be a guinea pig as need to get to root cause of the immune system disregulation. I was going to look at the Dr. Bruce Patterson long hauler blood tests, etc. to see, and than they have a protocol to try.

If you find any other posts or medications that could help with muscle pain issues, etc. let me know. Keep trying to fight on. I am not even sure what diet to follow any more as I already ate health.

Best of luck with everything, and hope we can find some definitive answers for those of us that have pretty normal blood work, yet all these symptoms.

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Replies to "Well let's hope all the money pumped into the research starts to find out why the..."

Hi. My dad is experiencing the same issues as you. He had Covid quite bad last Christmas and since then his muscles in his legs burn everyday and he’s in a lot of pain and can barely walk. He’s been told he has nerve damage but they haven’t really done many tests on him or provided much treatment (we are in the UK). He’s having some more bloods done in a few days but they are struggling to know how to treat it. I believe he has an autoimmune disease and needs to see a rheumatologist. Has anything worked for you since this post? I worry about him so much, I just feel so helpless. This condition is awful I really do sympathise with you and everyone who is suffering with long Covid. Such an awful disease 🙁