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My Sister and Best Friend

Neuroendocrine Tumors (NETs) | Last Active: Jun 23, 2023 | Replies (38)
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@meandmysis

I’m glad the injections are working for you. That makes me happy and hopeful for my sister. When were you diagnosed? Did they ever try the Cap/Tem?

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Replies to "I’m glad the injections are working for you. That makes me happy and hopeful for my..."
pavlina60 | @pavlina60 | Jun 19, 2023

I was diagnosed early December 2022. Had Ga Dotatate scan ( Jan 26)which showed a large tumor and I had surgery right away. I guess my tumor was too large to try Cap/Tem chemo to shrink it. I think this approached is for smaller tumors and metastases in order to shrink the tumor and consider surgery.

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