Can Prolia be safely and reasonably discontinued?

Posted by kdryder @kdryder, Mar 5, 2021

My wife is 85 years old, taking Prolia, and has recently moved to an assisted living facility. It is very difficult for her to travel from the ALF, and she does not wish to do so for any reason. Is there a point at which it is reasonable to discontinue Prolia infusions? (Note: The ALF will not do infusions on site.)

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hlp123 | @hlp123 | Jun 18, 2023

In reply to @salisbury2491 "I would love to know of some safe way of getting off Prolia" + (show)

I also am hoping that I can continue to be off of Prolia after my one year of Reclast. I still have the muscle and joint pain but I do not want to take anymore of these medications (biphosphonates) I am hoping we can continue to share information and walk each other through this.
Good luck to all.

doreenr | @doreenr | Jun 19, 2023

I don't understand some of the comments regarding Prolia "infusions". I've been on Prolia for 5 years and it's always been administered to me in a simple injection.

Also, I did stop Prolia for 3 months in anticipation of a root canal and it was a mistake as I spontaneously fractured 2 thoracic vertebrae. In horrible pain and had to wear a brace for 3 months. Had to have kyphoplasty. If you go off Prolia, from what I've read, you need to go on a bisphosphonate.

salisbury2491 | @salisbury2491 | Jun 19, 2023

Is there a doctor in the St. Louis area or at Barnes Hospital that is a specialist in getting off of Prolia?

windyshores | @windyshores | Jun 19, 2023

In reply to @salisbury2491 "Is there a doctor in the St. Louis area or at Barnes Hospital that is a..." + (show)

I recommend Dr. McCormick and his book: MD's don't seem to do the blood tests that determine the best timing for the Reclast follow-up, though maybe you can find one who will.