I was recently diagnosed with SFN (like, 3 weeks ago) but have had the symptoms that led to my SFN testing since I was quit young. It was called all kinds of other things, or blamed on multiple other conditions. So I, like you, have spent longer in this body in pain than I ever did pain free. The BEST solution I have ever found for what you are describing is a real, well preformed, deep tissue massage. Followed by copious amounts of range of motion exercises. I’m talking the kind of thing you learn in PT. Resistance band training is a good way to build long, lean muscle and improve body control and maintain range of motion.

Find a massage therapist you LOVE, who really knows about your body and explain to them what you are dealing with and what you want to do. They are your new best friend. Then start to get hooked up with a physical therapist or top tier athletic trainer and again- tell them where your at and what your realistic goals are. They can teach you so much about how to accommodate your limitations and still get the best of your body.

I was told when I was 17 that I would likely be in a wheelchair by 30. I’m 37, a full time dog trainer specializing in reactivity and aggression (at 5’1” some of these dog weigh what I do), and, while there are struggles, I still use my body just about every damn day. That wheel chair may come for me, but it isn’t today! I owe a great deal of that to amazing physical therapists who taught me SO much about my broken body and how to help it.