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My Sister and Best Friend

Neuroendocrine Tumors (NETs) | Last Active: Jun 23, 2023 | Replies (38)

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@meandmysis

Oh wow, I thought that she was only going to be taking two pills a day. I guess I should make sure they clarify that when we see them the next time. I know she’s expecting to be ill for a while. The hardest part for her, and all of us is that she looks so good right now, and we know that it’s expected to be ill while on chemo. I’m hoping that she will have minimal side effects. That more than anything that day treatment works.

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Replies to "Oh wow, I thought that she was only going to be taking two pills a day...."

I hear you. I want to remind you that CAPTEM is supposed to have the least amount of side effects for what we have. Every one has a different body. You really don't know until you start. You will also take Zofran a half hour before taking the temozolomide. It greatly helps with the nausea.