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My Sister and Best Friend

Neuroendocrine Tumors (NETs) | Last Active: Jun 23, 2023 | Replies (38)

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@tomrennie

Initially yes, but two of my tumors were blocking my pancreas from functioning. Once they shrunk and were no longer in the way, my side effects were manageable. The worst thing now is just feeling beat up... like I had a fight with a bear and lost. I will feel much better on Tuesday.

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Replies to "Initially yes, but two of my tumors were blocking my pancreas from functioning. Once they shrunk..."

When you first started taking the cap/tem, was it hard on you? I just wondered how soon after she starts those if she will experience side effects. She is currently working a full-time job. She is waiting on them to schedule a pet scan, then shortly after that she will start the chemo treatment. Also, how do they administer both chemo drugs? Do you take on in the morning and the other one in the evening? I know I’m asking a lot of questions, but we are so new at all of this.