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I was diagnosed with MAC in May 2015.

MAC & Bronchiectasis | Last Active: Jan 17, 2017 | Replies (85)

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@sophie1019

I have MAC. Does anyone have MAC??????

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Replies to "I have MAC. Does anyone have MAC??????"

I was just diagnosed. I am scared. I went to id doctor, and she js waiting ti figure iut what anti iotica ti give me. Ince she vet another report to come back. I had a bronchocopy done in November 2016. I was tild i had mrsa on my lungs and trachitis.
Then i ended yp in hispital fir 2 weeks at christmas wuth pnemonia.
It was o. decemer 29th i got a phone call telli g me I have Mac. I am nervouse because who know hiw long Inreally have this and i still am not on any meds. Who know what damage is going on my lungs.

Hello @dianelobosco, welcome to Connect. I can sense the uncertainty and anxiety that you must be feeling from your new diagnosis. We are glad that you found Mayo Clinic Connect, as you have found a group that has many members who support one-another.

I encourage you to also check out the large ongoing discussion about MAC, found here:

- MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE (MAC/MAI), http://mayocl.in/2cwX36M.

This is a discussion that was started by one of our active and supportive mentors, @katemn. You will meet many other welcoming members facing the same diagnosis as yourself. @dianelobosco, what sort of treatments have been suggested by your physician? You said you received the diagnosis on December 29th, has there been any communication with your medical provider since?

@dianelobosco .. Hello .. may I call you Diane? SO glad you found our Forum! It sounds like you are really going through a tough time! A lot to go through! PLEASE do not be so afraid! We ALL have been down this road .. we will be with you hand in hand now .. through out this journey of yours .. our SHARED journey .. we have ALL been down this SAME road as you have now started. We ALL were scared like you are right now.

BUT you will find IF as you have time that you read through the past pages of the Forum .. you will see that EACH of us has had a different journey through the treatment and disease .. BUT we are coming .. or HAVE come out on the other side. Please do keep coming back .. ask any questions you have .. we will be here for you .. you will find really kind supportive people here who will support you through this journey. Sending you a Big Hug in this tough time. Katherine

I went and saw my pulmonary dr 1/3/2017. He discussed whatvwas fkund and told me that i would get a referall ti an infectuous disease dr. He precribed azithromycin and got me started on it. I just saw the infectious disease dr on 1/11/2017. She took me off of the azithromycin, and said ti wait till we know what antibiotics will work for me. She said it can take upnto 6 weeks. My next appt at this rime in 3/12/2017. Unless she gets the report sooner. I am worried that I will cause damage to my lungs. Ibwant to gwt started and hopefully beat this.