1. < Neuropathy

Neuropathy moving from feet to legs

Posted by tessie63 @tessie63, May 15, 2023

I have neuropathy in my hands and feet from three sessions of chemo I had about three years ago now. I have a lot of pins and needles in both my hands and feet but no pain which is a blessing I guess. These pins and needles are none the less annoying. I drop a lot of things and am unable to open things without help. I live by myself and have had to formulate my own ways to do so many different things. I am now experiencing these pins and needles climbing up my legs and that worries me. Has anyone else experienced this? If so have they stopped there or is it possible for them to go else where in my body?

Interested in more discussions like this? Go to the Neuropathy Support Group.

sugarbear1 | @sugarbear1 | Jun 18, 2023
In reply to @njed "@louise1942 -- about 2 months ago, went to my primary doc and was given a prescription..." + (show)
@njed

@louise1942 -- about 2 months ago, went to my primary doc and was given a prescription for prednisone over a 10-day period, start with 3 pills, down to 2 down to 1. I had not taken pred for about 12 years. This was not prescribed for any pain related issue. As a side effect, I noticed way less pain in general all over. I am not on Gaba just over the counter pain meds. During the 10 days, I reduced my pain meds substantially. I know this med reduces inflammation but for me, it really reduced pain. Not sure how long this can be taken in a safe manner. So, for some, I guess it does work.

Jump to this post

I have taken Pregablin 100mg - 3 times per day for twenty years. I started with one 100 mg pill, then over the years he increased to The 3 100 Mg. Over the years my foot pain has kept me from doing a lot of things, but I know it could be worse. I usually have Walmart deliver my groceries, but I stop and shop a little too. It is good therapy.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Jun 18, 2023
In reply to @sugarbear1 "I have taken Pregablin 100mg - 3 times per day for twenty years. I started with..." + (show)
@sugarbear1

I have taken Pregablin 100mg - 3 times per day for twenty years. I started with one 100 mg pill, then over the years he increased to The 3 100 Mg. Over the years my foot pain has kept me from doing a lot of things, but I know it could be worse. I usually have Walmart deliver my groceries, but I stop and shop a little too. It is good therapy.

Jump to this post

Hi @sugarbear1, Welcome to Connect. It sounds like you have a good plan to deal with with the neuropathy symptoms which is helpful for anyone struggling with neuropathy. I'm fortunate in that I only have the numbness and no pain so there aren't any drugs that will help. It's not unusual for the dosage to increase over the years as they sometimes are less effective after awhile. The Foundation for Peripheral Neuropathy has a lot of helpful information on treatments and therapies to help you live well with neuropathy here - https://www.foundationforpn.org/living-well/.

Do you mind sharing what brought you to Connect? Were you trying to find an answer to a question?

REPLY
pat79 | @pat79 | Jun 18, 2023
In reply to @bettyg81pain "Is anyone familiar with the HFX Nevro spinal cord stimulator?? I just went through the trial..." + (show)
@bettyg81pain

Is anyone familiar with the HFX Nevro spinal cord stimulator??
I just went through the trial period with the Boston Scientific one. It actually made my legs “tingle” worse than not having the stimulator!! Got a friend who is having the HFX trial starting in a couple of weeks. Am certainly willing to go through another trial if I could find anything to help!!

Jump to this post

I have had the Stimwave spinal cord stimulator for 2 months now, for chronic back pain and neuropathy in my feet and legs. It hasn't really helped at all yet. Sometimes it seemed to be making everything worse. A new person took over setting the programs recently. This person has been more attentive to the matter and seems to be really trying to get it right, but so far has caused more pain in my back and set my legs into a flurry of painful activity. So while I was really hoping this would work, it isn't. I am 79 and have had 3 back surgeries to fix herniated disks and fusion for scoliosis. A neurosurgeon suggested the spinal cord stimulator instead of further surgery. It made sense because previous surgeries haven't really helped the pain. But no luck with this one either. I have had many people tell me these things work, so I am wondering if it is the people setting the programs that just don't have the skill to get it right. I know they can work. It worked during the trial. Still hoping someone might get it set right. @pat79

REPLY
carolperkins | @carolperkins | Jun 19, 2023
In reply to @roxiesmom13 "Just my curiosity but wondering about the dosage of gabapentin you all take? My husband takes..." + (show)
@roxiesmom13

Just my curiosity but wondering about the dosage of gabapentin you all take? My husband takes three in the morning and there at night for pain from transverse myolitis which causes neuropathy from feet to mid chest and hands.

Jump to this post

I am on 3 - 600 mg of gralise. It’s similar to gabapentin. I take it @ 5:00. Then I take hydrocodone and sleeping pills around 10:00. Even this does not give me a pain free sleep.

REPLY
View MoreView Less
Please sign in or register to post a reply.