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I was diagnosed with MAC in May 2015.
MAC & Bronchiectasis | Last Active: Jan 17, 2017 | Replies (85)Comment receiving replies
@pamelasc1 and @tessie -- I noticed a similar thread in your posts. You are both thin or slim, middle aged women. When I was diagnosed, my pulmonologist told me that the latest manifestation of MAC/MAI is in thin, middle-aged women. Seems to me, what we have in common is changes in hormones. Doctors just don't know the correlation. There is also some connection to low levels of Vitamin D.
Replies to "@pamelasc1 and @tessie -- I noticed a similar thread in your posts. You are both thin..."
Hello, I recently started on the 3 antibx for Mac treatment. I take mine at bedtime to make the nausea a little more manageable.
take with food!- I heard an expert say- if your urine is turning orange- enough is getting absorbed to work so take with food to minimize upset stomach
yup, urine is orange. I have follow up doc appt on June 29. They asked for three 'sputum collections'. I'm able to cough just a drop each. Hopefully it's sufficient. I want to avoid CT scan due to radiation. Thanks for writing to me.
Tessie, I don't know if it would make a difference for you .. but because of my coughing my Dr. Aksamit has me on two inhalers .. Qvar and Atrovent. I find that first thing in the morning before eating or drinking .. if I use BOTH inhalers .. 2 puffs each .. it causes me to cough up more sputum than usual so that I can mail in a sputum sample to Mayo Clinic more easily. Otherwise I am not always able to create the amount of sputum necessary at the Clinic .. that specimen comes back marked "Too Scant" or something like that. So if you use an inhaler and it makes you cough .. you might try my pattern of 1st thing in the morning?
Mayo Clinic gives me a shipping box that I FedEx to them with the sputum sample (placing a freezer thing in it for refrigeration). Hope this idea might help you? Katherine
Thank you very much! I'll ask my doc
I'm so glad you told me.
thanks
Gayle
Jill are you still on the meds? Doing OK?
Just started and hope to hear success stories.
Hope you are getting better.
Kay
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Hi Pamela<br />
True, my doc told me same. Tall, slim older women. I lost weight at first.<br />
Gradually I felt I had to eat with split meals, here and there. I do not<br />
have bronchitis but I caught pneumonia in Oct. 2012. I returned home from<br />
Europe with pneumonia. I think my immune system was weak and I believe some<br />
air borne particle may be blamed for MAC. The medical profession doesn't<br />
know but as I understand it the clinics in the states are the best compared<br />
to Canada. I take Rifampin first thing in the morning on an empty stomach,<br />
then wait one hour before food intake. When do you take yours? I tend to<br />
burp often - stomach upset so I take TUMS which helps somewhat. I don't<br />
have nasal drip but I must say, 3-sets of pills certainly drugs me up. I'm<br />
dazed. And, I've had eye tests too. I hope we get rid of it once and for<br />
all.<br />
<br />
-- <br />
*Gayle*<br />
<br />
*Toronto Ontario*<br />