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Seeking info on use of parasympathetic block for complex regional pain
Chronic Pain | Last Active: Apr 14 5:05am | Replies (35)Comment receiving replies
Hello @cperlin and @connie2023 -
Wow, @connie2023, this is fantastic information to share. Not only what you have found helpful, but information and positivity. A big take away is to be your own, best advocate - speak the truth!
Connie, have you given further consideration to the Mayo Clinic Pain Rehabilitation Center for learned ways of managing CRPS symptoms?
Mayo Pain Rehabilitation Center -
Another way to learn about the PRC is through patient testimonials which really provide an insiders look of personal journeys and experiences. Here's a link to Mayo's newest testimonials, as well as Dr. Sletten's CSS video -
Mayo Clinic Pain Rehabilitation Center Testimonials:
- https://www.youtube.com/playlist?list=PLSWR1ylG_6JaW_4FLJGeSLwu1lPSRMATp
When I first discovered the PRC it was by way of Dr. Sletten's video about central sensitization. He presents the science behind chronic pain and offers a plan forward to find the best quality of life possible. Have you seen his video?
@cperlin Outside of procedures, implants, medications - have you ever considered a pain rehabilitation program? I went through the whole gambit of injections, nerve blocks, ablations, etc... ,but none of it ever helped enough. I got sick of band aid treatments. I do understand trying everything
(and did) and do respect each person's individual journey of pain management - just throwing out another approach to anyone possibly interested.
Hope you all have a great day!
Replies to "Hello @cperlin and @connie2023 - Wow, @connie2023, this is fantastic information to share. Not only what..."
Thank you so much for the links along with the info.
I do wish that I could get to Mayo for evaluation, as I have several issues that have been around for several years. A neurologist (was heralded by my primary care provider as being "so highly sought after that you will be getting a very distal appointment") did all that she could with my brain lesions, ataxia, double vision, vertigo, nerve "zaps" and a slew of other things that came to a head in 2014. She even sent me into NYC to be examined by other top neurologists, and no one could give a determination as to whether or not it was MS. Certainly wasn't any of the other disorders/diseases that were tested, and I was grateful for that. But she finally told me I should consider Mayo. Unfortunately, my husband's medical issues did not permit even thinking about it, especially since it is so very far from our home. I cannot travel solo, and have no one else to accompany me, so I am exploring avenues available to me via several great doctors within decent driving distance. It's complicated...but I'm thrilled to have found connect.mayoclinic.org, and that I can have access to such compassionate and helpful people on this site. ¡Mil gracias! I will be going to the sites that have been provided.
💝😊
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@rwinney @cperlin Yes, I have! I had my doctor refer me to the Jacksonville PRC and I have appointments in July with a Pain Management physician and a Psychiatrist as the next step to get accepted into the program. The videos you mention are very good and encouraging to anyone experiencing chronic pain.