Rare cancer: ovarian clear cell carcinoma

Posted by odette @odette, Jul 18, 2018

Connect with others with ovarian clear cell carcinoma

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@mema2

Hi
I had one ovary removed 10 years ago, no cancer. PET scan 2 weeks.. along with a mammogram. I am 61 far from a young asian woman hahaha!

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@mema You are sure getting scanned from every angle. I’m 71 and far from a young white woman. My mind thinks I’m 30 years younger but my body sure does not! 😊

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@colleenyoung

Welcome to Connect, @odette and @kenwood1. I'm delighted that you found each other so quickly. Being diagnosed with a rare cancer, like ovarian clear cell carcinoma, it can be a challenge to find others like you.

Odette, when were you diagnosed? Have you started treatment?
Kenwood, Do you have more chemo to go or was 6 rounds the completed treatment at this time? How are you feeling?

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I finished my third round of chemo for my clear cell uterine cancer. The last session they gave me neulasta. I have been experiencing bone pain which they say is a side effect. This my 9th day after and I am finally having relief from the pain. My head still is terribly fuzzy. I am hoping this gets better with more time.

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@plshouse1

I finished my third round of chemo for my clear cell uterine cancer. The last session they gave me neulasta. I have been experiencing bone pain which they say is a side effect. This my 9th day after and I am finally having relief from the pain. My head still is terribly fuzzy. I am hoping this gets better with more time.

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I have had one cycle of chemotherapy for the same type of cancer as yours. We must have been diagnosed close in time. My I ask how where the first and second cycle for you? Is it get a lot more difficult or were they all this hard. Just curious about how others have done on this regiment?
I hope you feel better so and for awhile.

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Clear cell ovarian cancer stage 2/3 here!

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@jbdoxey00

Clear cell ovarian cancer stage 2/3 here!

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@jbdoxey00. Welcome to Mayo Clinic Connect and to our Gynecological Cancers Support Group. Have you read through some of the other discussions? I hope you will find support and information here that will be helpful to you.

May I ask you to share a little of your story? When did you receive your diagnosis and what is your treatment plan?

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