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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 1:21pm | Replies (445)

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@vellen

After going down from 15mg to 12.5mg after two weeks, I called to complain about breakthrough pain only to have the doctor convince me to stay on the lower dose. I called again yesterday because the pain had spread from my neck to my shoulders and lower back.
My doctor is out until July 11 because his wife had a baby. The nurse just said that was fine to increase to 15mg... eyeroll. I mentioned the main reason I called is that a refill would be needed sooner and to make a note in the file.
I made an appointment with another doctor at the clinic regarding the Tramadol he is reluctant to refill. We'll see how that goes. This is so not fun. I am nearly deaf and for some reason when talking to most people on the phone, I have to keep reminding them in the SAME conversation. I'm just tired and hope I can get a break sooner rather than later.

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Replies to "After going down from 15mg to 12.5mg after two weeks, I called to complain about breakthrough..."

Yikes. I think I’d do the same as you and bump back up to 15 mg. We’ve had situations like that after we got more comfortable with adjusting the prednisone that we started making small changes ourselves (i.e. staying an extra week on a higher dose before titration or going up by 2.5 mg if it seemed like a flare).

Can you ask if there is a different rheumatologist covering for yours who can send the refill for you?