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Neuropathy and Keeping Your Cool

Neuropathy | Last Active: Jun 19, 2023 | Replies (15)
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@njed

@ray666 No doubt, again, you brought up a very important subject to all of us with PN. I've noticed in the past two years, my patience level is not what it was....well, OK...it was never that great to begin with, but my wife reminds me to be patient with things that have become a struggle in the past several years. She is the opposite, calm personality which contributes towards our 51 years of marriage. PN has a degree of fatigue, and it is frustrating because unless you have PN, you don't know what it's like. I have battled off many other health issues including epilepsy which is under control with meds. But, PN has no meds, no fix. I feel it is OK to get frustrated now and then. You ask how to deal with it. I put on some music - the 60's stuff, relax and think about things other than the PN. Ed

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Ray Kemble | @ray666 | Jun 17, 2023

@njed Hi, Ed. My partner is the opposite. She has a very short fuse. But she rarely, if ever, gets angry with me. She gets angry at inanimate objects (stub your toe sort of things) and every other night at some story on the evening news (I'll get angry at some stories, too). She often tells me that I'm a great influence on her (which I doubt, but hearing it is nice). Frankly, my PN has taught me to be calmer (Take it easy, Ray). It's almost like stepping into a whole new world. I've new rules to learn, a new language (all those medical terms! LOL), a new way of pacing myself (for the most part, so I don't stumble over my two Size 13s). I won't say this to just anyone, because they'll think I'm fooling them, delusionary, or simply crazy (the jury's out on this last one), but I'm happy. I really am. Now that I've pretty much wrestled my everyday PN frustrations to the mat, I've learned to be OK with the new me. Ah, that 60s music! The music of my high school days. Those were good days – for the most part (LOL). Besides the 60s music … let's see, driving across town earlier I had Bruce Springsteen serenading me. Along with all those great 60s tunes (on the big-hole disks), the Boss, too, always lifts my spirits to the heights.

Have a grand weekend, Ed.
Ray

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