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Fluoroquinolone toxicity

Neuropathy | Last Active: Sep 29 8:15am | Replies (45)

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@johnbishop

Welcome @xerky1024, I'm sorry you had to retype your post. I'm not sure what happened but thank you for taking the time to type your story again. I can't even begin to imagine how difficult it has been for you to be given something that was meant to help you get rid of a UTI and then ends up being your worst nightmare.

I know you've done a lot of research but I thought I would share a few links in case you haven't seen them.
--- Treatment of the Fluoroquinolone-Associated Disability: The Pathobiochemical Implications: https://www.semanticscholar.org/paper/Treatment-of-the-Fluoroquinolone-Associated-The-Michalak-Sobolewska-W%C5%82odarczyk/9eea355de62ed4adf184a9dd80bf7b07e1e0637b
--- Antioxidant therapy in the management of fluoroquinolone-associated disability: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7667412/

Mayo Clinic Rochester also has a clinical trial that is active:
--- A Study to Evaluate Biomarkers of Fluoroquinolone-induced Mitochondrial Toxicity: https://www.mayo.edu/research/clinical-trials/cls-20464386.

Have you done any research or tried any treatments to help with your neuropathy or Sjogren's symptoms?

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Replies to "Welcome @xerky1024, I'm sorry you had to retype your post. I'm not sure what happened but..."

Thank you for responding to my notes. Well, a close physician friend of mine a physiatrist took me to see a naturopathic physician. He seemed to be the best most well informed regarding this. He put me on several supplements, including a ATP and some other things that I was unfamiliar with. It was difficult for me to follow the number of recommendations in my state that I was in. As part of his long list of recommendations was taking these very large pills, which were difficult for me to swallow due to the dysphagia which was one of the symptoms that came upon me. Making it difficult to swallow. He also had wanted me to go on a very strict diet, which I attempted, but due to lack of finances, could not keep up with the multitude of recommendations. He wanted me to go on a diet, including things like wild salmon and very specific food items which I did not have easy access to. Also the 20 to 30 minutes of exercise per day. Which is very difficult to do when you are afraid your tendons are going to snap just walking around. So in terms of research, I probably should have done more. I got a book called the Levaquin toxicity solution by a woman name Carrie something . And I did a lot of the things that she said, including rubbing magnesium topically on all my joints and tendon areas. It did not seem to help I tried. But my mental capacity and skills had been affected so much that my independence just was declining so rapidly at the time I was overwhelmed, as well as the depression I just shut down in many ways, and simply gave up. I truly didn’t think I would still be around this long due to the severity of all my symptoms. I will look up the articles you suggested. If I can’t, I will have, my wife or friends look at them or make copies for me. Thank you very much for your willingness to share and your empathy.