Connect
← Return to PMR Dosages and Managing Symptoms
Discussion
PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 1:21pm | Replies (445)Comment receiving replies
I have GCA and it took me a long time to get to 10mg, three years, with lots of ups and downs(along with Actemra weekly). I'll be 83 in September.
My rheumatologist, who I really respect, had me reduce by .5 mg every 3-4 weeks after 10mg. You will feel better in many ways but probably fatigued; listen to your body. I'm thankful your doctor looks at the individual. I'm down to 3mg per day. Just had a bone scan last week and I was shocked; no osteoporosis, just osteopenia.
The medical field is still working on coming up with treatment without so many side effects, but it is all we have. My best to you💞
Replies to "I have GCA and it took me a long time to get to 10mg, three years,..."
Connect
Hi, You and I have a bit in common. I am 80 years old and was diagnosed with GCA last August. I had PMR diagnosed late 2015 and my blood meds showed remission about 2 years later. I forgot [almost] that I had had PMR.
Now with GCA, prednisone has given me a cocktail of side effects. My rheumatologist says no to prednisone being the cause but for me , the coincidence is just too much. I have sensory neuropathy which means my feet are partially numb , so I walk very carefully. I have also suddenly developed Atrial fibrillation . I have never had any suggestion of heart disease until now. My main source of pain is a lumbar stenosis. Yes, of course I have the chipmunk face . All of this has changed my life. Mostly I just want to stay at home. A fair bit of fatigue involved.
My current dose is 11mg down from 50 over several months. I see rheumatologist next Thursday. Eye specialist the following week and then cardiologist mid July.
I'm trying to keep positive and will Google possible dietary changes which may help. Thankyou for sharing your circumstances. Valerie.