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Adenocarcinoma with Neuroendocrine

Neuroendocrine Tumors (NETs) | Last Active: Nov 28, 2023 | Replies (18)

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@tomrennie

Wow, you have had quite the journey to diagnosis. Welcome to the team that none of us wanted to be on, but here we are. First of all, relax. NETs are not an immediate death sentence. I know, because I came close. A lack of diagnosis for years had me very ill. 9 months of chemo has me feeling the best that I have in years. Do you know if the oncologist is a NET specialist that works with a cross functional team? I think the terms used are multi-dimensional team? That is another thing. There are all kinds of big words folks use. I grew up around the corner from Rocky Balboa. I don't know too many big words. I keep a medical dictionary nearby and I ask people to dumb it down for me. A lot can't. My main oncologist said great and started drawing me pictures. I knew then that I had the right doctor for me. How else can we help?

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Replies to "Wow, you have had quite the journey to diagnosis. Welcome to the team that none of..."

Regarding your RELAX NETs are not an immediate death sentence. Mine is, I have less than six months if that, Oncologist said. NETs can be treated by Chemo, what Nets I have can be too, but I have Adenocarcinoma with Neuroendocrine Differentiations, which means Nets can be treated by Chemo or the Adenocarcinoma can be treated by Chemo, but hey BOTH CAN NOT.

MY PRAYERS TO ANYONE WITH ANY ILLNESS DOES NOT STOP, I PRAY FOR YOU ALL AND MAY GOD BLESS EACH OF YOU