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← Return to Living with Syringomyelia
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Spine Health | Last Active: Oct 2, 2023 | Replies (69)
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Thank you.
Unfortunately where I live, the doctors have know real understanding of what syringomyelia is, but I'm setting up appointments at Mayo with,my neurosurgeon and neurologist this September, hopefully they'll figure something out for me.
Replies to "Thank you. Unfortunately where I live, the doctors have know real understanding of what syringomyelia is,..."
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@woundedbear64 I was diagnosed at Mayo Clinic in Rochester MN. Their neurology and neurosurgery depts are the best! They are very knowledgeable and skilled. I was diagnosed with Syringomyelia and Chiari Malformation. Both of which were large. I did have surgery performed there to stop the progression of both conditions. Surgery was a success. I continue to be monitored yearly by my Mayo team. I actually have my yearly appointment coming up in the near future. I look forward to going every year.
This was almost eight years ago. I am still employed full time, living alone and still able to do almost everything except a few things. What I am able to do it just takes a bit longer to complete, but I am able to do it. So I would say I am living a full and happy life despite having Chiari Malformation and Syringomyelia.