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Kidney cancer patients: Let's connect and introduce yourself

Kidney Cancer | Last Active: 1 day ago | Replies (231)
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@rtw1268

Sounds familiar to what I'm going through. I have noticed my voice is kinda raspy. My last CT showed a tumor on my kidney, and lungs and lymph nodes. I'm 59 and I'm quitting work to focus on my health. Good luck on your journey. It does feel good to converse with someone who is going through the same thing. Take care.

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buckeyeveteran | @buckeyeveteran | Jun 18, 2023

I have been on opdivo and cabometryx for two years now. The original renal cancer was removed with surgery, then the cancer moved into the lungs (had a "spot" removed with minor surgery) and now has settled into the spleen and pancreas. The Opdivo/Cabometryx immunotherapy which I have been taking for two years has shrunk the renal spots on the spleen and pancreas, but now the doctor wants to discontinue the Opdivo. His comment was that Immunotherapy normally is for two years and then continue with Cabometryx.
My question is why, if the Opdivo/Cabometryx mix is working, do we want to change things?
Is this an insurance thing or does it have something to do with long-term immunotherapy affecting the body? I plan to trying convincing him to continue what's working.

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