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Limited Scleroderma or CREST Syndrome: What helps?

Autoimmune Diseases | Last Active: Jul 25 9:13am | Replies (80)

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@memissyb

Honesty, everybody is different but I do lactaid milk instead of regular milk it has helped tremendously. The only yogurt I eat is that free fage. Sugar is really bad for me but I still need a small bite of chocolate almost everyday. I cut out a lot of breads I only have a occasionally and I definitely eat a green leafy salad everyday for minute foods are really good for the microbiomes so I eat sauerkraut everyday applesauce because I can't eat apples due to dentures are a prebiotic naturally. For a while I was intermittent fasting and that seemed like a great idea but I started to get a little weak in the morning so now I'm just doing small meals throughout the day. Depending on your symptoms you're just going to have to experiment and be your best advocate when it comes to the doctor. There are some great doctors out there but there are some really bad ones too that don't seem to even listen you just have to keep plugging along till you find who you connect with. I've had to tell my doctors more about my disease and they know because it's not that common. You can get on the site scleroderma foundation find lots of answers there also.

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Replies to "Honesty, everybody is different but I do lactaid milk instead of regular milk it has helped..."

I also go to that website and now belong to the seraderma foundation, want to be part of any research studies if they have them. Thanks for the heads up on diet I will try some of the things you suggested.

I am trying really hard to find a happy medium for diet. Right now, I have esophageal scleroderma, so the GERD is harder to control. I had only been eating once a day since not being able to eat past 2pm without suffering so bad at night. Since finally getting a diagnosis and a doctor that is determined, we have changed meds, and I’m trying 3-4 small meals a day, saving my blandest for after 2 pm (like oatmeal, cream of wheat, or a Boost). I’m finally losing about a pound every other day or so. I will finally see a rheumatologist in July. Thanks for your ideas on dietary!