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Neuropathy and Keeping Your Cool

Neuropathy | Last Active: Jun 19, 2023 | Replies (15)

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@roslyn2314

Ray
I think your reaction was very normal. We all have to deal with our diagnosis in our own way, no matter what disease we are going to fight. If it’s a new diagnosis which you find out is in curable as in neuropathy it becomes a pretty devastating affair with so many reactions delayed or immediate presenting in stages…I was just so pissed off at first then moved onto finding a cure, reading everything I could on google, searching tirelessly for a cure that just isn’t there …eventually comes acceptance but not without a big fight in my case. I look back on great physical activities and adventures I had with much appreciation …Now I’m just looking at tips to managing pain, live life as best I can, while my legs die and go numb from the toes up and hoping that in my lifetime a cure will be found. This diagnosis of neuropathy and living with it, is by far the biggest challenge in my life and I’ve had a few …..All the best with acceptance and coping in the days and years ahead ..

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Replies to "Ray I think your reaction was very normal. We all have to deal with our diagnosis..."

Hi, Roslyn

You're so right when you say that acceptance takes time. It simply can't be rushed. Although my diagnosis is relatively recent, in only a few months, I've become a voracious reader of information, trying always to be very selective in where I go for that information. (There's such garbage out there.) My condition, too, is turning me into quite the activist, something I'd not been before (not as energetically as I seem to be now). I'm pushing as hard as I to see that research funding is both there and sufficient, not necessarily that there might be a cure in my lifetime but in the lifetimes of people to come.

Take good care, Rosalyn. I hope we'll get to exchange more posts in the future.

Cheers!
Ray