Are you taking Reclast for osteoporosis?

Posted by Becky, Volunteer Mentor @becsbuddy, Jul 21, 2020

Two years ago I was diagnosed with pretty bad osteoporosis because of the prednisone I was on for my autoimmune disease. I started taking Fosamax (a bisphosphonate) and had no problems. Today, the endocrinologist suggested that I switch to Reclast for 3 yearly infusions. Has anyone else taken this drug? What side effects have you had?
Thanks

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@forrestj

Hi. I'm a 60 year old male in North East Texas with osteoporosis due to a roux n y gastric bypass that I had in 2000. I've dealt with malnutrition, vitamin, mineral and protein deficiency for many years and over the past 10 years developed kyphosis, hunching over. Diagnosed with advanced osteoporosis and offered a course of Reclast. Have had two Reclast infusions in past two years with absolutely no side effects. I can't say what the benefits are other than to help rebuild bones to make them stronger again and have noticed nothing different in my life other than I did have to get some dental work done last year. Tooth extraction and my dentist refused to do the extraction due to my recent Reclast infusion. Was told that there have been instances in the past where lower jaw failed to thrive after dental procedure and that a patient had to have their jaw reconstructed.

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Heya! Has your bone density increased using Reclast? Hope your jawline is still strong.

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I am on Reclast. When I was on drug holiday, I fell and broke some bones, so I am glad I am back on it. My mother was not on anything and she fell and broke her hip and died. I think Osteoporosis runs in my family. My mom, aunts and cousins have had quite a few broken bones

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I had a reclast infusion 1 year and doc is scheduling another infusion soon. FYI...I had terrible reaction. Bone and muscle pain like nothing I have ever known. I spent two days in the hospital for pain management. The doc wants me to come in for consultation before the infusion this year. I am I can be hospitalized this time from the the begining. Drink plenty of water for a couple days before. Check into taking tynol before and after. Request the infusion be administered in 30 to 45 mins. Not the usual 15 min time frame. Some ppl have this infusion with no problems. Wishing you all the best!!

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@grandmaketchup

I had a reclast infusion 1 year and doc is scheduling another infusion soon. FYI...I had terrible reaction. Bone and muscle pain like nothing I have ever known. I spent two days in the hospital for pain management. The doc wants me to come in for consultation before the infusion this year. I am I can be hospitalized this time from the the begining. Drink plenty of water for a couple days before. Check into taking tynol before and after. Request the infusion be administered in 30 to 45 mins. Not the usual 15 min time frame. Some ppl have this infusion with no problems. Wishing you all the best!!

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My doc is going to do 20% of the normal dose to see how I handle it. I will hydrate, premedicate and ask for a slow infusion. Three months later he said to let him know what dose I want next.

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@windyshores

My doc is going to do 20% of the normal dose to see how I handle it. I will hydrate, premedicate and ask for a slow infusion. Three months later he said to let him know what dose I want next.

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This is great information. I plan to chat with my doc about doing something like this. Thank you so much!!!

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@kelstos

How did your course of Tymlos go? I really really wanted it to work, and so I ignored the first symptoms of side effects until it got to the point where they knocked me out. Seriously. That was December of 2021. Today—June 15, 2023—I just sat for my first infusion of Reclast.

I am 62 with the bones of an 82-year old. For most of my life I was an athlete, competing at world and national levels as recently as 2009 (masters). So cardio and weight bearing exercises were part of everyday life. I always ate right, abstained from alcohol, sugar, processed meats, manufactured foods, and cigarettes, etc. So it really surprised me three years ago to find out not only that I had osteoporosis, but that it was so severe.

And that's life. We can prepare. We can take precautions. We can believe we're doing or have done all the "right things" but that doesn't necessarily spare us, does it?

Trust and hope all is well. Connect when you can!

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If you haven't already done so, have your blood levels checked for serum calcium, ionized calcium, vitamin D and parathyroid hormone to check for hyperparathyroidism, which pulls calcium out of your bones causing osteoporosis. I've had high/normal calcium for years and my doctor finally decided to check my parathyroid levels, which are also high. I am getting a scan to check my parathyroid glands, but an endocrine surgeon said I will need surgery even if nothing shows up on the scan, based on my blood work. After surgery, osteoporosis usually gets a little better as the bones pull calcium back into them.

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For my advanced Osteoporosis , I had a course of Forteo and now, depending on Bone Density , I get an infusion Reclast. I have been lucky that I've had no reaction from either of these medications. I am receiving treatment at Hospital for Special Surgery, NYC.

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I'd like to thank everyone who has commented on Mayo Connect, it's been such a blessing. I stumbled on this site a few weeks ago, then proceeded to read it front to back. The education I've gotten is priceless! The soures of information shared, again, priceless! I finally looked up Keith McCormick, DC. The best thing I could have done, he eased my mind tremendously! I have a much better understanding & am not as fearful of pharma treatments, when necessary. He said they're a great tool if used properly & explains. I want to leave the link here in hopes that maybe it will help someone else.
https://margiebissinger.com/186-osteoporosis-medications-pros-and-cons-dr-r-keith-mccormick/
p.s. windyshores, your posts have been quite helpful throughout the threads Ty.

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@rola

I'd like to thank everyone who has commented on Mayo Connect, it's been such a blessing. I stumbled on this site a few weeks ago, then proceeded to read it front to back. The education I've gotten is priceless! The soures of information shared, again, priceless! I finally looked up Keith McCormick, DC. The best thing I could have done, he eased my mind tremendously! I have a much better understanding & am not as fearful of pharma treatments, when necessary. He said they're a great tool if used properly & explains. I want to leave the link here in hopes that maybe it will help someone else.
https://margiebissinger.com/186-osteoporosis-medications-pros-and-cons-dr-r-keith-mccormick/
p.s. windyshores, your posts have been quite helpful throughout the threads Ty.

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Great video@rola. Thanks for posting it. (I have been seeing Dr. McCormick with his mask on and it was nice to see his face again!). Excellent thorough information on medications. McCormick had a lot of fractures in his mi-40's and did Forteo then 6 months of Fosamax, and since then has used nutrition etc. He still does triatholons.

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I was also lucky and did not have side effects right after. I did have some joint and bone pain off and on for the first 6 months. About to have my second. Wouldn’t do it if I didn’t have to. Had a hip fracture from a fall a year and a half ago. I have osteoporosis. And I couldn’t tolerate fosomax due to my gut.

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