← Return to NETs: Scheduled for small intestine resection: What to expect?

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@zebraflower

Digestion issues are different for everyone. I had about a yard of small intestine removed and NETs in other places two years ago. There are about a dozen small NETS in my liver. I take lanreotide. I have worked with several nutritionists over the course of my illness and learned important info. Only rarely do I go a day without diarrhea, which is especially bad after the shots. I find it important to stay hydrated and now drink electrolytes. The foods that I tolerate well are meat, fish and eggs, peeled potatoes, white rice and bread, apple sauce, strawberries, melon, brie, and well cooked oatmeal. As a former vegetarian it has been a difficult transition. Also no alcohol, caffeine, beans, garlic or most raw fruits and vegetables, and no soy. Every few months or so I try to eat a salad or something with no-no foods. It doesn't often go well.
FODMAP food maps are an excellent resource. I've provided useful info below, but this platform doesn't allow links.

This one is from another medication for NET but it has a lot recipes on there that are low amine foods that you can take a look at:
Managing the Symptoms of Carcinoid Syndrome (sandostatin.com)
For a comprehensive list of foods to eat and those to avoid:
Eating Right with a Neuroendocrine Tumor (NET) (netrf.org)

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Replies to "Digestion issues are different for everyone. I had about a yard of small intestine removed and..."

You are right about us all having different digestive systems in handling foods after a resection. I think it depends up what section of your intestine is removed as well as how much. Supposedly we all have different lengths of our intestines much. I had a resection a number of years ago but I can tolerate quite well raw vegetables. What I can't handle at all is anything sugary and can't drink at one time an entire glass of fluid, even water. I think most of my hydration comes from my raw vegetable intake like cucumbers. Diet for each of us is trial and error but most of what you list is good especially the protein part. I avoid beef quite a bit but find fish and especially sardines to work very well for me. I am not a big fan of sardines but you have to eat what works for you regardless. Sorry for you that you can't do salad. Maybe it is the dressing. I just do vinegar instead of any commercial salad dressing. Sometimes it is hard to know what is the culprit when you have problems especially with all the additives in processed foods. I can't do soy either and it gives me a headache besides. I think it has a chemical in it similar to MSG which for me gives me migraines.