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Polymyalgia Rheumatica (PMR) | Last Active: Jun 15, 2023 | Replies (18)
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Replies to "Thank you for sharing that emo. I was diagnosed with fibromyalgia as a main condition since..."
Yikes, I agree... FYI, when I mentioned a pain specialist, I did not mean a pain clinic that relies mostly on narcotics ::shuddering right with you!:: But glad you've found some things that work.
PMR is not what you needed, probably not what anyone needs. I thought fibromyalgia and my other chronic conditions were challenging to deal with (and they totally are), but when I saw just how much PMR completely incapacitated my dad when he started having symptoms, it was frightening. He had severe fatigue and such bad pain he couldn't get out of bed for days, and the worst part was his PCP was completely clueless and their clinic team would not believe my mom and I when we were trying to explain he has a family history of autoimmune conditions and should be screened for autoimmune conditions and inflammatory markers. My mom practically had to wheel him into the clinic to see a rheumatologist by the time we found one, and we got lucky and didn't even have to wait as long as it usually takes.
I'm wishing you the best and hoping you'll find the right path with the prednisone and the taper, and that it doesn't rock the boat too much with all the good work you've done with the fibro.