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Breakthrough Pain?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 15, 2023 | Replies (18)

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@vellen

Thank you for sharing that emo. I was diagnosed with fibromyalgia as a main condition since 1999 as my doctor's mother suffered from it and he would give me handfuls of Tramadol samples that he said helped his mom. I'm still on it today (100-150mg per day) though I was taking Darvocet prior to it being discontinued and that worked better than anything else I've tried, including narcotics from a pain clinic *shudders. I did see a rheumatologist back then who told me to swim, I kid you not. I was able to work until 2005 or so and went on disability. The judge approved it for the migraines rather than the fibromyalgia, go figure.
I had gotten very good knowing my limitations as well what to expect fallout-wise when it wasn't possible to stay within those parameters. Now PMR, really not what I needed. Suffice it to say that I can easily recognize PMR vs. fibro pain plus the fact that the Tramadol barely helps the inflammation if at all.

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Replies to "Thank you for sharing that emo. I was diagnosed with fibromyalgia as a main condition since..."

Yikes, I agree... FYI, when I mentioned a pain specialist, I did not mean a pain clinic that relies mostly on narcotics ::shuddering right with you!:: But glad you've found some things that work.

PMR is not what you needed, probably not what anyone needs. I thought fibromyalgia and my other chronic conditions were challenging to deal with (and they totally are), but when I saw just how much PMR completely incapacitated my dad when he started having symptoms, it was frightening. He had severe fatigue and such bad pain he couldn't get out of bed for days, and the worst part was his PCP was completely clueless and their clinic team would not believe my mom and I when we were trying to explain he has a family history of autoimmune conditions and should be screened for autoimmune conditions and inflammatory markers. My mom practically had to wheel him into the clinic to see a rheumatologist by the time we found one, and we got lucky and didn't even have to wait as long as it usually takes.

I'm wishing you the best and hoping you'll find the right path with the prednisone and the taper, and that it doesn't rock the boat too much with all the good work you've done with the fibro.