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Adenocarcinoma with Neuroendocrine

Neuroendocrine Tumors (NETs) | Last Active: Nov 28, 2023 | Replies (18)

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@billyfeet

I believe that I have the same or similar diagnosis. Just got the pathology report yesterday. We thought it was a Neuroendocrine Tumor on tail of Pancreas. Biopsy prior to surgery was clearly Neuroendocrine. After surgery….tail of pancreas, spleen and gall bladder removed…..it seems that about 30% of the tumor is adeno carcinoma…….the tumors are mixed together. I have not had a chance to discuss mortality of possibilities going forward. I am too sick just trying to recover from the surgery.

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Replies to "I believe that I have the same or similar diagnosis. Just got the pathology report yesterday...."

I'm very sorry to read this latest post of yours. This is everyone's nightmare.... That the doctors misdiagnosed a PNET and the battle becomes larger and longer. Why did it take so long for them to determine the nature of the tumor and what are they saying about it now? My surgery is next week. I'm terrified again. Your first posts gave me hope, but this news is disheartening. Maybe it's not a good idea for us all to share our stories🙏. I pray that the doctors have something definitive to tell you soon and that the news is better.

May your recovery be fast, and your strength be strong. In my Prayers