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PMR Dosages and Managing Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)Comment receiving replies
@vellen Your question echoes the topic of the this thread.
Perhaps others @johnbishop / a clinician ? Medical person? would like to chime in here ?
For me the prolonged morning stiffness/pain was too variable for my quality of Life and daily activity goals - I went on Medical Leave. Even working from home could not begin until about 2 pm ! I have (more* ) quickly been tapering 2.5mg/ every 6 days. So May 26 into June has been devoted to this I will get to that lower dose 10mg stage -but with this little blip - in the grand time course of this coming up - not worried about "hi dose side effects at all " *Perhaps @bfh3 could also update us on how he is faring ? I know we were on a similar start date of increasing to 30mg. ( I always think of you now when I mow my FLAT lawn with an electric mower!! : ) I upped @walkamok 's graph and used 2 axes !!! @lizward46 is also in this discussion ( May 31)
Replies to "@vellen Your question echoes the topic of the this thread. Perhaps others @johnbishop / a clinician..."
Thank you and this is the first time, I can say that a lawn has triggered a memory of me. The visual of your all green graph does look like a lawn.
Hi Everyone, I thought I would weigh in as I just had a dr. appt. with my rheumatologist. Recap: I was diagnosed in May 2023, started with 30mg of prednisone for one week, then to25 for one week, then to 20 for two weeks (approx). At our latest appointment she wants me to taper to 17.5mg for the next week, and continue 2.5, taper weekly until I get to 10mg. At 10 mg I will start a very slow taper (probably 1mg or less). Since I started on the prednisone I have had no joint pain whatsoever. Feels like a miracle until I start reading about the long term side effects of this drug. Today I had a dexa scan as I do have osteopenia. I am currently taking 1000 calcium, 2000 vit D, and vit K. Maybe this will offset the calcium leaching effects of the prednisone. I am continuing with a pretty strict anti inflammatory diet which has to be helpful in some way (otherwise I will begin to gorge on hotdogs and brownies). It does seem that doctors assess each patient individually based on so many variables. I also have no other underlying conditions that I know of. Good luck to all. I will keep you posted during this second phase of tapering. Liz Ward
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Hi @vellen and @nyxygirl, Unfortunately I am not a medical professional and have no medical background other than being a patient who has had 2 ugly PMR visitations. Fortunately my PMR has went into witness protection and is hiding. The only common factor I see from different members is tapering off of prednisone is different for each of us and slow and easy is the name of the game to get to remission. If it ever visits me again, I'm thinking of giving the Dead slow and nearly stop reduction plan (Tapering) a try ---
https://healthunlocked.com/pmrgcauk/posts/131189593/dead-slow-and-nearly-stop-reduction-plan