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Ulcerative colitis - worried about medications

Digestive Health | Last Active: Aug 24, 2023 | Replies (70)

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@vafields

Thank you for your response! I’m so sorry for your tribulations dealing with UC. My son is only 30 and has no real quality of life now. All the research indicates this monoclonal antibody can be a game changer. I’m grateful it’s been working for you!!!!

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Replies to "Thank you for your response! I’m so sorry for your tribulations dealing with UC. My son..."

Thank you! Me too! IBD (ulcerative colitis and Crohn’s) typically present in younger people, but there is a trend now where it is presenting in people 50-60 and sadly, in children too! I presented at 60 and didn’t know what was happening. I had always been healthy - no issues, no Rx, ate good, wholesome foods, exercised... It came out of nowhere and took months to diagnose. It altered our lives tremendously!! I was fortunate to find a brilliant GI doctor who understands this disease and is up on all the data. We discuss treatments, clinical trials and real life data. He’s passionate about it because he’s good at what he does, and sadly, his daughter has it - she presented at the age of 7! As a parent and grandparent, I find that heartbreaking!! I know how horrible this disease is and how it affects every part of your life and everyone in your life!! I am blessed to have a loving, supportive husband that has been there every second of my most embarrassing, horrific, emotional moments. Unless you live this roller coaster of hell or love someone that has, you really can’t imagine how horrible it is and how it affects every facet of your life!!!! Your son is fortunate to have you! Continue to be supportive, research, find the right doctor (and pray). I have and continue to do all of the above. Just since I have been diagnosed, there have been several launches of new drugs for IBD. There is also a wealth of information on sites like Crohn’s and Colitis Foundation and Bezzy (IBD support site). Get all the information you can and a competent doctor. It’s a long journey, but there is hope!! I wish you the very best!! And please do not hesitate to reach out to me anytime. I have been at my lowest with this illness because it affects every part of your body and what it does to you emotionally is also rough. Don’t hesitate to talk to a mental health care professional, too, because there are very dark days with this chronic illness!!! I have learned to take one day at a time and be grateful for small wins… 🙏🏻❤️