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My body hurts and I don't know what to do

Bones, Joints & Muscles | Last Active: Jun 22, 2023 | Replies (10)

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@timtoby

thank you so much for the help!! i take advil sometimes because i already experience collapsing and struggle walking for long periods of time,
my jaw is always in a lot of pain so i understand that, I have ADHD and am likely on the autism spectrum and one of the main ways i fidget is by chewing which constantly strains my jaw joints 🙁

thank you so much for the help, ill try exercises, but it might be hard for me because i am also asthmatic

I am a teen for context, newly 15, so getting help is very hard for me since my mom doesn't believe me in the slightest. My boyfriend is also hypermobile and receives physical therapy, but my mom flat out told me even if I needed it she would not bring me because I have "too many appointments already" due to needing a dissociative specializing therapist and a psychiatrist

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Replies to "thank you so much for the help!! i take advil sometimes because i already experience collapsing..."

Hi, @emo is so right, do keep advocating for yourself.

I wanted to add that just because you have asthma doesn’t mean you can’t be active and exercise. According to https://www.lung.org/lung-health-diseases/lung-disease-lookup/asthma/managing-asthma/asthma-and-exercise : “In fact, many Olympians and professional athletes have asthma. As long as you manage your symptoms, you can participate in any sport or activity.” It also says: “Exercise is important for overall health as well as lung health, and there are many benefits of physical activity for people living with asthma. Daily exercise helps to improve your lungs capacity, in other words, the maximum amount of oxygen your body can use. Also, exercise increases blood flow to your lungs, promoting blood flow to the heart which pumps oxygen throughout your body. For example, people who exercise have more ability to pull oxygen from the lungs and into the blood that feeds the muscles that keep us going.” And because of our hypermobility our connective tissue needs all the oxygen it can get.

I know when you exercise your pain may increase. But there are ways to exercise that will not cause injury and can greatly improve your quality of life. This article has some good suggestions: https://medium.com/@jeanniehmyers/exercising-with-hypermobility-813bbee2243f . Cycling, swimming, hiking, and dancing are fun low-impact options.

Also do consider getting some fidget toys instead of chewing. Some suggestions are here: https://www.medicalnewstoday.com/articles/best-fidget-toys#fa-qs . I wish I hadn’t chewed so much gum during the pandemic and maybe now I wouldn’t have a jaw that locks and broken off bony spurs in my tmj that need to be removed in surgery next month. No more chewing gum for me; I learned my lesson.

Best luck on your journey to a strong, healthy you @timtoby.