Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Posted by rita2023 @rita2023, Mar 28, 2023

Hello everyone. I have a parent who has been diagnosed with NETs, and we are considering a visit to the Mayo Clinic for treatment or at least a second opinion. We are specifically looking for a center that provides Octreoscans/ Ga-68 scans because she has only had regular CT scans done so far, but due to the specifics of her case, we feel uneasy with the results and want something more accurate. Does the Mayo Clinic offer these types of scans? If not, does anybody have any recommendations for centers that do? We're Canadian, so if anybody knows any centers up north, those recommendations would be more than welcome too.

Thank you.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Zebra | @californiazebra | Mar 31, 2023

For anyone in the S. CA area, I had my DOTATATE PET Scan at UCLA in Westwood. They do both Ga68 and Cu64 (what I had) for my lung NETs.

tlf56831 | @tlf56831 | Apr 23, 2023

Anyone ever taken Everolimus before? If so can you share your experience please ! Thank you!!

tlf56831 | @tlf56831 | Apr 23, 2023

Try Roswell cancer center in buffalo, New York

Colleen Young, Connect Director | @colleenyoung | May 4, 2023

In reply to @tlf56831 "Anyone ever taken Everolimus before? If so can you share your experience please ! Thank you!!" + (show)

You may be interested in this related discussion in the NETs support group:
- Affinitor - Pneumonitis https://connect.mayoclinic.org/discussion/affinitor-pneumonitis/

prasad3029 | @prasad3029 | May 8, 2023

In reply to @hopeful33250 "Hello @rita2023 and welcome to the NETs discussion group on Mayo Clinic Connect. You are wise..." + (show)

Hello I had recently diagnosed with Duodenal NET Grade 1. Dotatate/ Gallium 68 scan show no Tumor anywhere not in duodenal too. As the NET tumor( 4-5 mm) is removed while doing endoscopy biopsy. Doctor has told to observe every 6 Month. And recheck.

rrlbees | @rrlbees | Jun 14, 2023

In reply to @pavlina60 "I have been treated for pancreatic NET in Upstate Cancer Center in Syracuse, NY. They have..." + (show)

Who in Syracuse does this scan?

pavlina60 | @pavlina60 | Jun 14, 2023

In reply to @rrlbees "Who in Syracuse does this scan?" + (show)

Upstate Cancer Center. I was treated by Dr.Dhir ( HPB - HepatoBilliary group)

rrlbees | @rrlbees | Jun 14, 2023

In reply to @pavlina60 "Upstate Cancer Center. I was treated by Dr.Dhir ( HPB - HepatoBilliary group)" + (show)

That’s great news. The last time I asked, which was a few years ago, nobody in the Syracuse area did the dotatate scan with gallium. How long ago did you have the scan?