When my mom had cancer, I found the palliative care and home health care to be great. When hospice came in, they really did not do anything additional for us. Maybe you should inquire with your palliative care nurses about whatever it is that you need. I think that many people are not familiar with the palliative care and home health combination. I used to think that was the same as hospice. I ended up really liking the palliative care team that came to her house.

I never did find the level of help that I felt like I needed. A local Council on Aging, or something of that sort, might have additional information for you. Before you switch to hospice, be sure you understand what they will provide. From your description, they never offered us any more than what you describe you already have.

I am sorry that my answer may seem rather disorganized. When you asked what her deterioration may look like, it took me back and it made me feel very upset. I would not recommend reading what hospice websites tell you about the end of life. I did not find that very accurate to what happened in our family. I do think it would be good if you could get someone to give you an honest answer about what the end of life may look like, so you could mentally and emotionally prepare yourself. I think that it may vary between people and it also may be a very difficult thing to talk about for many people (myself included). I hope you can find a doctor or nurse or someone that will give you honest answers.