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@gardenlady1116

I have been housebound a bit, having to eat and wait an hour before I go out and being very aware of where the bathrooms are. I don't like to eat much if I am away from home. I have surgery scheduled June 21st. At least I know that I need 72,000 Creon before meals and that has improved things substantially and my appetite is better. I am hoping this will remain the same after surgery, it took months to get the dose high enough, finally about 3-4 weeks ago with the help of the hepatobiliary dietician at MSKCC.

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Replies to "I have been housebound a bit, having to eat and wait an hour before I go..."

Good luck on your surgery. You are lucky to have found the right dosage. Mine is iffy, works 95% of the time, but the other 5% bring surprises.