← Return to Limited Scleroderma or CREST Syndrome: What helps?
DiscussionLimited Scleroderma or CREST Syndrome: What helps?
Autoimmune Diseases | Last Active: Feb 17 3:52pm | Replies (89)Comment receiving replies
Replies to "Hello Amanda, I am so sorry you have been diagnosed with limited scleraderma. I have had..."
Hello, I stumbled onto this site this morning when I was looking up some other information and was happy to see this thread. I was diagnosed by a rheumatologist after every single doctor I went to blamed my weight for all my ailments. I had the beginning symptoms of dry mouth and not being able to swallow. I was prescribed prilosec which I never took. 5 years later the rheumatologist got it right. I chose not to do steroids. My symptoms weren't too bad then. Now, another 5 years later the symptoms are getting worse. Reynauds in winter is not fun. I just turned 72 so my struggle is not knowing when a new ailment begins if it's just an "old age" thing or if it has to do with CREST. I am not a lover of doctors. I don't go to them anymore because they don't help. My rheumatologist moved and I haven't found a new one yet. In the meantime I just do the best I can. I LOVED your reply to Amanda. You told her that she could ask you anything she needed to know. That's so cool. I'd like to ask you something as it's the main thing I'm confused about. If you could simply explain the difference between LIMITED and not limited, I'd sure appreciate it. I don't know which one I've got. I've read the internet answers but there's too many details. I just want a simple answer. Thank you.