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← Return to Limited Scleroderma or CREST Syndrome: What helps?
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Limited Scleroderma or CREST Syndrome: What helps?
Autoimmune Diseases | Last Active: 2 days ago | Replies (76)Comment receiving replies
Hello @gkuntz114hayden and welcome to Mayo Clinic Connect. I wanted to quickly connect you with others who have experience with CREST, so you will notice I have moved your post here:
- Limited Scleroderma or CREST Syndrome: What helps?: https://connect.mayoclinic.org/discussion/crest-syndrome/
Members like @shasmith @csmirat and @angellav may be able to rejoin the discussion to share more with you.
What are you most concerned about or looking for feedback on specifically so that others may best share?
Replies to "Hello @gkuntz114hayden and welcome to Mayo Clinic Connect. I wanted to quickly connect you with others..."
Hello Amanda, I am so sorry you have been diagnosed with limited scleraderma. I have had it for now 23 years. I would advise you to find a good rheumatologist, a woman would be better. I have had no luck with men drs. All the symptoms you describe are a part of my life. I have learned to trust myself and know how to handle things with my doctors. I have hand picked all my doctors and finally have a team of drs rom same hospital I can trust and know they trust my instincts and my own disease. If there is anything you need to know or ask please do. I would love to give back to someone since I was helped alot. I am Also a nurse so I have alot of knowledge about disease processes
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