Permanent SIBO due to removal of ileocecal valve

My local library has the book so I will give it a try. Thanks for sharing:)

I did not have removal of the ileocecal valve. But I have SIBO, being treated with Paleozyme digestive enzymes after several bites of food and Dr. Shade's No.9 bitters, 10 minutes before eating , L-Glutamine first thing in the morning, Enteragram twice daily with or without food, and probiotics. With the guidance of a nutritionist, I only eat fruit low in fructose which include all the berries, do not use sugar but do use organic Stevia for my coffee and with plain yogurt, drink raw Kefir because it's fermented and eat other fermented foods such as pickles from the refrigerated section of the market, gluten free breads, pasta and crackers and chips. Bacteria that are in the small intestine have come from the lower intestine to feed and they feed on sugars. Drastically reducing sugars in the diet gets these bacteria back into the lower digestive tract where they belong from my understanding.
Hope this is helpful to you. All the best.

Hi Gigi
Great information, helpful to how hear others are dealing with SIBO issues. What dose of l-glutamine do you take in the morning?

Hello,
I order from a company called ReadiSorb GO. One packet contains 500 mg. taken first thing in the morning. It’s what my doctor recommended. I’ve been taking about 2 1/2 years.

Thanks so much for the information. Unfortunately, it contains sugar which I can have only in very limited quantities. I will look for another brand that has is sugar free.

I had an emergency bowel resection last August. I had a twisted intestine and a portion of my small intestine and large intestine had to be removed. I just learned yesterday fro my appointment with a PA that I no longer have my cecal valve. Now I understand why I haven't had a normal formed stool since before my surgery. I deal with diarrhea everyday. Has anyone else had this situation and what foods work for you , along with any other helpful hints.

I’ve had the same due to adhesions
Besides SIBO another problem is that I am limited to the amount of iron. Ferritin. B12 Vitamin d and calcium I absorb. I need to take iron infusions annually, b12 shots weekly and 50,000 vit d weekly
That area of intestines is part that absorbs vitamins and minerals

Marcysew,
I have no illeocecal valve too and have chronic SIBO as a result. I started with Citracel on the advice of my Surgeon which was a bead idea as it disrupts the mucosal layer in the intestine. When I found that out I tried the following supplements:
QUESTRAN (Cholestyramine for Oral Suspension USP), had to order compounded cholestryamine from a pharmacy out of California as the name brand product had artificial sugars that cause gas. This is nasty stuff, smells like dried fish, coats teeth in an uncomfortable sandy film. I ended up packing gel caps and only needed 1/16 tsp to control my bile acid loose stool. Only used a short time as it ended up causing scary, painful constipation.

SACCHAROMYCES BOULARDII probiotic, commonly used for traveler’s diarrhea

CALCIUM CARBONATE 1000mg per day, this form of calcium is constipating for me.

SEEKING HEALTH PROBIOTA 12 - just added this and it’s working great. I am ate 8 yrs post surgery, the probiotics did not seem to do much for me while I was still healing from surgery.

Beyond this I ate only soup for a year to allow my gut to heal. Avoid bone broth as the carbs in the cartilage feed SIBO. I used beef gelatin and collagen to help healing, as well as Vitamin A.

Hope this helps:)

I use Cholestyramine for oral suspension USP,4g for my diarrhea. I have used it for over 40 years. It works. Sometimes I have constipation when my bowel movement starts again. But this just started within the last year.

I am glad a group like this is here. I have no ileocecal valve after twisted colon surgery.3 years ago My surgeon denied it caused SIBO but my GI doctor ( in same hospital group) confirmed it did and said surgeon was "old school" and wrong. Could he have saved the valve? I will never know but surgeons need to be more educated in this area if they are going to continue to perform these procedures. My SIBO is hydrogen sulfide sibo which now, in addition to the intestinal issues, it appears to be creating even more systemic issues ( neuropathy fatigue rashes etcThe xifaxan stopped working and am getting ready to start a new treatment called Alinia, which insurance does not cover, but I dont care about that now. Would love to hear from others esp those who have Hydrogen Sulfide SIBO Thinking about elemental diet; hate to give up food again but getting desearate. Wishing Mayo Clinic did ileocecal valve replacements. Maybe one day.