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High or Fluctuating Chromogranin A Level: What does it mean?
Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)Comment receiving replies
Hello,
I am a 28 year old dialysis patient. I recently had blood work from my Endocrinologist and my CgA level is 1805. I did not have enough time to go over everything with him during my appointment (it was a lot to discuss and go over). From what I've read online - a number of factors can cause this to be high. I do have a tumor on my left adrenal gland that was found back in 17 but nobody wanted to operate on me due to insanely high BP levels (300/180) even on meds. Has anyone had or heard of such high levels for just a dialysis patient? Could this test be a secondary identifier to the tumor that was already found on imaging? Any insight is appreciated and I hope everyone is well!
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A chromogranin level of 1800 is quite high and taking account your blood pressure and a tumor near the adrenal gland for me would be quite alarming. I had high blood pressure and a large 10 cm tumor near the adrenal gland and was referred to a city of hope surgical oncologist. I needed preoperative alpha and beta blockers to control blood pressure as they said I could have a stroke during surgery. The surgery was successful, unfortunately the left kidney and adrenal gland had to be removed. Post-op diagnosis was extra adrenal Pheochromocytoma or Paraganglioma. The two terms are interchangeable more or less. I would ask your doctor to have additional testing such as 24 hour urine and plasma catecholamines as well as 24 hour urine and plasma metanephrine.