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Anyone experience extreme fatigue with BCG Treatment?

Bladder Cancer | Last Active: Jun 21 11:00am | Replies (18)

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@sepdvm

Good morning @sunny98. My husband had BCG treatment and into maintenance for highly aggressive invasive urothelial cancer of the bladder, but after his surgery and chemo so any tiredness from BCG didn't seem as bad as the postop and chemo period. He was a BCG failure so didn't continue with it. One thing that concerns me is the diagnosis of noninvasive from a scope but no biopsy. We go to Mayo Clinic Rochester and every suspicious scope has required a return visit for biopsy. My own 11 year battle with cancer has included some immune therapy and it is surprising how tired it makes you. Even when I have no evidence of disease, there is a new level of exhaustion that I never knew pre-cancer. Forcing yourself into a little exercise, even if just a 20 minute walk each day does help you to feel better with more energy. Also listening to your body and maybe adding in a quick afternoon nap is needed at this time. It sounds like a second opinion might be a good idea if you are doubting your daughter's diagnosis and treatment. Having records sent and scheduling a video visit can be an option also. As Linda said, keep asking questions until you are satisfied. Patients must take an active role in their care, even though sometimes that means more time the doctor and staff have to spend answering questions and explaining thoroughly. Good luck and I hope your daughter begins to feel better soon.
Susan

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Replies to "Good morning @sunny98. My husband had BCG treatment and into maintenance for highly aggressive invasive urothelial..."

Hi! Thank you so much for your thoughtful reply. Im so sorry for all that you and your family is going through.
My daughter had two turbt, (biopsies and scraping) one under blue light and that is how he determined she has both high and low grade non invasive bladder cancer. Im probably just over reacting , Im so afraid her tiredness is the cancer spreading. My understanding is high grade cancer is flat and adheres to the bladder lining snd will move towards the muscle and the low grade cancer grows kinda hanging down into the bladder. She’s just really tired. Again, Thank you for reaching out and we will be sure to ask more questions. You and your family are in my thoughts and prayers. Im sorry your husband’s journey is so hard. He’s very blessed to have you by his side and i hope your own health is good. I am a survivor too and many times i’ve said i didn’t realize the things i learned and suffered and grew from would one day be a blessing so i could better understand how to help my girl. Goodluck Sue! 🥰